Endometriosis Support Group – Nashville TN
My sister and I both have been diagnosed with Endo within the past couple of years and it feels just confusing and heavy. we wanted to start a local endometriosis support group. To be there for each other on the hard days and understand. It looks so different for everyone. We live in nashville, in case you are in the area and are interested in joing:
https://www.facebook.com/groups/endosistersnashville/
we have had some trouble kicking it off. it is just hard to get it out there. If you have any great resources to get our group out there let me know.
What is endo belly (endometriosis belly)?
What were your first symptoms of endometriosis?
The first signs and symptoms of endometriosis aren’t always easy to identify, and they can vary significantly depending on the disease’s location and severity. Some can experience severe symptoms, while others do not exhibit any noticeable symptoms until later in life. The common initial signs and symptoms of endometriosis are severe, debilitating abdominal cramps; pelvic pain; painful periods; long heavy periods; nausea and/or vomiting, painful sex; painful bowel movement and urination; infertility; and chronic fatigue.
Most of these symptoms are common with other diseases, which makes a great reason for confusion and delayed diagnosis of endometriosis. But we need to ensure that someone with any symptoms related to endometriosis knows about this disease and can advocate for themselves.
What were the initial problems that led you to a diagnosis of endometriosis?
At what age did your first endometriosis symptoms start?
Each patient has a different beginning to their endometriosis journey at a different age. Age sometimes has been a factor that makes doctors disregard endometriosis despite its significant impact on a person’s life. Unfortunately, we still see patients being denied care at the beginning of their diseases or later despite having endometriosis symptoms, all because their age was not “”typical.” A part of this problem is due to many people not being aware of how endometriosis can start at different ages. Therefore we wanted to invite you to talk about the age that it all started and your initial symptoms. Someone will read your story and find an answer to many problems because of endometriosis.
Is there an Icare doctor in Canada?
Hi,
I live in London Ontario, is there a doctor in Canada that you recommend? Please, thanks!
Real world endometriosis stories from endowarriors
endo pain with stopping sex
hello! for years ive struggled with stopping sex to the point where if i dont stop moving the thing im using to pleasure myself and chill for a bit before taking it out i am in so much pain i near vomit. has anyone else experienced this? is it common? are there any other ways to manage it?
Marilyn Monroe’s battle with endometriosis
Read more:
Help
This is going to be long winded so apologies- I had a c section in november (my second child). After my section I was in and out of hospital for pains. A doctor in hospital handed me a letter for my GP. My partner accidentally opened it and it stated i had endometriosis (made sense I have a lot of the symptoms). I asked my GP and she said yes ai most likely have it if they wrote it down and basically nothing will be done. I am in severe pain, so exhausted, and the pain has spread to underneath my ribs each period. I dont even know if its severe and I have not even been advised ways in which to help manage. Im completely lost and need help! What can I do? How cN I be seen?
Why is Ireland so behind and it’s women have to suffer without help!?
Afternoon, from an unusually very sunny green Ireland. I won’t mess around with the topic in question and will get straight into topic in question.
I am an Irish female now 27, had my very first period at age 9. I would have to triple pads as I had “gushes” when standing. Bad pains always and throughout the years was told the usual attention seeking or puberty related etc . Sent through cross border scheme to see a Gynae specialist in Northern Ireland at 17 years old through the H.S.E to cut their waiting times as I was waiting approximately 3 years . Fast forward and results from surgery were large amounts mostly found in the Pouch of Douglas. Not much else was said our explained. As it was cross border care no more help was offered. Merina fitted at time of surgery & Pill also required with no breaks.
weight gain followed and headaches with bleeding still every few weeks . Removed after 4 years and embedded.
fast forward to age 27. Two children thankfully but bad pregnancies. Now crippled in pain periods not regular and pains can last 4 days before until a week after. Not much period cramping more pain felt in lower back and also very bottom of spine near anus .
bowel movements that have me mooing like a cow on all fours and using up to 4 heat pads at once . Pain meds supplied . Going private is not an option as work full time and get by like a normal individual. No care really available to me at my last Gynae appointment they sympathised so much and sent a referral to the endometriosis clinic in Ireland . A waiting list that could take two years . Been offered injections to put me into menopause temporarily .
where does one go? How can one be left in such a situation ? Horrific pains that leave you in bursts of agony and tears and unless you have a lot of money no help . The system is so wrong the wait is cruel
Would you like to help finding a way to better manage Endo for you and me?
Hi Everyone,
I was diagnosed with Endometriosis 2 years ago and since then I’ve been trying to understand the condition and very recently I had the opportunity to do my thesis and I picked managing endometriosis. As the symptoms are so varied I’m hoping through my research there is a pattern we can discover that could be beneficial for us suffering.
I would appreciate it of you could fill the survey below and if you have the time participate in the interview or workshop. For 45 mins As this would help so much with the research and all of us in the end. I can only achieve this with your help!
